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News About Donal’s Surgery

Date: February 9, 2014 Author: OWNER Categories: Donal's Mom's Blog 10

Before Donal’s surgery, we decided not to tell him the details of his operation, we just told him that he was going to have more tests and that he would be asleep. We decided that the anxiety caused by telling him would far out weighted any benefits. I really don’t know if that was the best approach, we struggled with it and maybe we bottled it in the end, it’s hard to know.

When we arrived at the hospital he was on great form, running down the corridors. The morning of the operation he was happily playing mine craft. We asked for a premed to ensure that he was relaxed going to theatre, he was a bit too relaxed, laughing his head of and telling me I had turned orange with blue hair.

After surgery was a different story.

The operation lasted 2 hours but it was at least 4 hours before we could see him. He was in intensive care and more tubes coming out of him than I have ever seen (and I have seen a lot since we started). Of course he was heavily sedated, he couldn’t speak and when we asked how he was feeling, all he could do is give us a little thumbs up.

The next day they had reduced the sedation slightly so he was awake but not for long. When he was awake he was very sad, I suspect it was the pain relief drugs but it was very hard to deal with. He said he was annoyed with himself for being sick again. Of course we told him that none of this was his fault and that he was the bravest boy in the world and hugged and kissed him but he was still sad. Perhaps we had not made the right decision and we should have prepared him for the aftermath of the surgery, we were so worried about him not be anxious before going to theatre that we didn’t really help him understand what was happening and why.

We explained to him that while the doctors were doing the tests, they found some bad cells (he know cancer cells as bad cells) and decided to take them out to make him feel better. The heartbreak is that we can’t say “make him all better”. We have months/years of very painful treatments ahead before we can even get close to a cure. Everyone says take each day at a time but it is impossible, you can’t help yourself from thinking (and worrying) ahead.

The good news is that the surgery was successful they managed to remove 95% of his main tumour. Of course we had hoped for 100% but were told that it would have been too risky. We have also received good news that the cancer has reduced in his bones, the tumours have disappeared from around his eyes and his lungs. It looks like the next step for Donal will be preparing him for bonemarrrow transplant once he has recovered from his surgery.

We are now just looking forward to see Donal smile again but we know that will come back soon with the help of a lot of lego and jammie dodgers!

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10 Comments: "News About Donal’s Surgery"

  1. Published by: Fiona Date: February 9, 2014

    Reply

    We’re so pleased that the op is over for Donal and that the news is as good as it can be. We’re thinking of you all. Fiona & Stevex

  2. Published by: Kellie McLaren Date: February 9, 2014

    Reply

    Thinking of you all Jane Mary you did what any parents would do….protecting Donal xx

  3. Published by: Sharon Mullen Date: February 10, 2014

    Reply

  4. Published by: Mary mc Garrity Date: February 10, 2014

    Reply

    Thinking of all of you so glad surgery is over .just focus on the positives….much love auntie Mary x

  5. Published by: Deirdre Eaton Date: February 10, 2014

    Reply

    That’s great news, my heart goes out to you all. He is indeed a very brave wee soldier. life is so cruel sometimes. xx

    1. Published by: Pasha Date: February 14, 2016

      Reply

      for the record I’m 16 and have a srtong like for Bressie, Fantasy was a great song, I also absolutely adore glen hansard, lisa hannigan and damien rice, and this guy was recommended to me by my older cousin. Its called variety

  6. Published by: Shambles Mc Goldrick Date: February 10, 2014

    Reply

    Go Donal

  7. Published by: Michele Smith Date: February 10, 2014

    Reply

    You are all so so brave. We are all thinking of you and especially that very special young man x

  8. Published by: Dee and Gerry Date: February 11, 2014

    Reply

    You are a brave boy Donal ,auntie Dee and uncle Gerry are thinking of you all the time and it is good to hear that the doctors and nurses are looking after you and making you better. Keep playing with your Lego, we hear you are very clever at building it, well done. Our love to your mom and dad and big brother James

  9. Published by: Dorothy Gear Date: February 11, 2014

    Reply

    Janemary Glad Donal is recovering from his surgery. Gnews they got 95%away with plenty of prayersrecovery will be good God bless Your self Andy James & Donal

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