Donal’s Mom’s Blog

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Waiting for the phone call we thought would never come.

Date: March 1, 2015 Author: OWNER Categories: Donal's Mom's Blog 2

We were waiting for two days for the phone call from Donal’s consultant, I was beside myself with worry and spent most of the two days in tears. Our trip to Michigan to start Donal on a clinical trial, was all planned with the hospital, plane tickets booked for the following morning, but I couldn’t…

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Final Week of Immunotherapy

Date: January 10, 2015 Author: OWNER Categories: Donal's Mom's Blog 4

What a way to see in the new year. Donal was in hospital for his final week of immunotherapy. As James was off school we decided to bring him to Dublin with us. Donal really adores his big brother James and was delighted to have him there during the day. As only one parent can…

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Next steps in Donal’s treatment

Date: November 24, 2014 Author: OWNER Categories: Donal's Mom's Blog 1

There have been many moments over the last year where I have stopped myself and thought “how the hell did I get there” and this is definitely one of those moments. It only took three little words to change everything, “Donal has cancer”, but even after over a year, it still doesn’t seem real. It’s…

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One Year Later

Date: October 21, 2014 Author: OWNER Categories: Donal's Mom's Blog 3

Today is the day that changed everything for us. On the 21st October 2013, we walk Donal into A&E in Sligo General and once the paediatric doctors saw Donal, we soon realised we were not dealing with a virus. It wasn’t until the following day that we were told that they suspected cancer and he…

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Immunotherapy

Date: September 10, 2014 Author: OWNER Categories: Donal's Mom's Blog 2

Here we are again, back in St John’s Ward, Crumlin for Donal to start a new treatment, immunotherapy. We have just had three whole weeks at home with only occasional trips to our local hospital for bloods. It has been like a holiday with real glimpses back into our old lives. Donal has had friends…

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I don’t know how you do it

Date: August 17, 2014 Author: OWNER Categories: Donal's Mom's Blog 1

Most people I meet say “I don’t know how you do it” but the question I want to ask is “How do I not do it?” If someone could tell me how I can pull the duvet over my head and weep all day without it affecting the boys, I would like to know. For…

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Donal the Staring Champ!

Date: July 19, 2014 Author: OWNER Categories: Donal's Mom's Blog 2

We have discovered Donal has a new string to his bow, not only is he strong and determined, a writer and master lego builder but we can now add champion starer! Donal has completed his radiotherapy. Throughout the 3 weeks, he has challenged everyone he met to a staring competition and I can now announce…

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Time for Radiotherapy

Date: June 15, 2014 Author: OWNER Categories: Donal's Mom's Blog 1

Here we go again, Donal is heading into yet another treatment, this time Radiotherapy. Donal got through his last treatment, the Bone Marrow Transplant and the doctors were delighted with how well he tolerated it. To be honest it was very very tough, I am hoping that Donal won’t remember the worst days due to…

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Just A Little Boy

Date: May 5, 2014 Author: OWNER Categories: Donal's Mom's Blog 1

Is Donal really a fighter? Is he really a brave warrior? I know that as his Mum (and biggest fan) that you wouldn’t expect me to ask these questions. With all my heart I hope he is fighting and battling this cancer with extra super human strength, but what I do know for sure is…

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Donal has his stem cell transplant

Date: April 22, 2014 Author: OWNER Categories: Donal's Mom's Blog 10

Today was a big day for us, Donal had his Stem Cell transplant. We were told before hand that the transplant was not as big an event as you would imagine, it takes place in his hospital room, it consists of Syringes being given to him in his central line ( this is a line…

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It’s Donal’s Birthday!

Date: April 6, 2014 Author: OWNER Categories: Donal's Mom's Blog 1

My little boy isn’t little anymore! It is Donal’s 7th Birthday today and he is delighted. We have had a whole week at home and have been planning a little Lego themed party. I have even baked a cake and decorated it as a Lego brick, with a lot of help from James, Donal’s 12…

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Swine Flu & Stem Cells

Date: March 20, 2014 Author: OWNER Categories: Donal's Mom's Blog 3

At last we are all clear of the swine flu! The doctors couldn’t believe that Donal had the swine flu as he has so few symptoms, a temperature and a runny nose for two days. On the third day, he woke up and said “Mum, I had a great nights sleep” and the symptoms were…

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Why do you let them do this to me?

Date: March 5, 2014 Author: OWNER Categories: Donal's Mom's Blog 5

The devastation caused by this cancer is just relentless. It’s not just the physical/clinical issues, the hair loss, the lose of weight, the pain and terrible sickness, these are all issues that most people are somehow aware of. It’s the psychological issues that don’t really seem to get addressed but are also very painful and…

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Doctors, beware of lego missiles

Date: February 20, 2014 Author: OWNER Categories: Donal's Mom's Blog 2

It is great to be able to start this update with good news. If you have been following the updates you know that the surgeon only managed to remove 95% of Donals main tumour. We got the lab results a week after the surgery and they confirmed that the tumour they removed was 100% necrotic…

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News About Donal’s Surgery

Date: February 9, 2014 Author: OWNER Categories: Donal's Mom's Blog 10

Before Donal’s surgery, we decided not to tell him the details of his operation, we just told him that he was going to have more tests and that he would be asleep. We decided that the anxiety caused by telling him would far out weighted any benefits. I really don’t know if that was the…

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How do you tell a 6 year old he is going to have surgery?

Date: February 6, 2014 Author: OWNER Categories: Donal's Mom's Blog 4

We have just received confirmation that they can go ahead with the surgery to try and remove the main tumour in Donal’s abdomen. We know this is good progress and it has to happen but it doesn’t make it any easier. Donal is getting stronger every day, he has even started riding his little bike…

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Donal has the giggles

Date: February 1, 2014 Author: OWNER Categories: Donal's Mom's Blog 1

Whatever they put in Donal’s general anaesthetic, I want some of it. Donal went in for a bone marrow biopsy on Wednesday, he was grumpy as hell before going in because they interrupted him building his new lego set. He fought the pre-med all the way to theatre. He was slow to wake up, but…

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Off to Crumlin

Date: January 27, 2014 Author: OWNER Categories: Donal's Mom's Blog 0

Off to Dublin tomorrow for more tests, should be a short stay this week if all goes well. Donal will soon have finished his day 80 tests and we will then have a clearer idea of what we are facing next. Facebook page coming very soon, this will have more details about Donal and the…

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Our lives fell apart on the 21st October 2013

Date: January 25, 2014 Author: OWNER Categories: Donal's Mom's Blog 0

Our lives fell apart on the 21st October 2013. Donal had been tired and pale for a few weeks and had been complaining of a sore tummy. We had taken him to the GP several times, initially we were told that it was a virus then when we went back were given antibiotics. The side…

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